Raising kids is like juggling flaming swords while blindfolded. Now add a child with Autism Spectrum Disorder (ASD) into the mix and suddenly, you’re juggling flaming swords on a unicycle—on a tightrope—during a windstorm. Sound dramatic? Maybe. Accurate? Also yes.
But here’s the thing: Parents of children with ASD are not just juggling. They’re building the tightrope as they go. And somehow, they’re doing it with love, resilience, and a whole lot of coffee.
Here’s how many parents cope (and sometimes even thrive!) while raising a child with ASD:
1. They Become Masters of Research
“Special interests” isn’t just for kids on the spectrum. Parents quickly develop a PhD-level understanding of terms like sensory processing, stimming, and occupational therapy. Google becomes their best friend (and worst enemy at 2am).
Pro tip: Stick with trusted sources and communities. And remember—what works for one child may not work for yours, and that’s okay.
2. They Build a Support Squad
Whether it’s an amazing teacher, a switched-on OT, or that one friend who just gets it—the support crew is essential. Having people to vent to, bounce ideas off, or share wins with (like “he ate something green today!”) is gold.
Bonus points if you find another ASD parent. Their nod of solidarity when your kid licks the wall at the playground? Priceless.
3. They Redefine ‘Normal’
Forget Pinterest-perfect birthday parties or quiet family dinners at fancy restaurants. Parents of kids with ASD learn to find joy in the beautifully unpredictable. That first eye contact, a spontaneous hug, or a meltdown-free shopping trip becomes a major celebration.
Because in this world, progress isn’t always linear—but it’s always worth cheering for.
4. They Advocate Like Superheroes
You don’t know your own strength until you’ve argued with a school admin, an insurance company, and a judgmental stranger—all before lunch. ASD parents become fierce advocates, armed with knowledge and love.
And capes. Don’t forget the invisible capes.
5. They Practice Radical Self-Care (Eventually)
Many parents admit they put themselves last… until they burn out. The truth? You can’t pour from an empty cup (even if that cup is filled with lukewarm coffee and crumbs).
Taking 10 minutes for yourself—whether it’s a walk, a nap, or binge-watching a show you don’t have to explain to anyone—isn’t selfish. It’s survival.
6. They Lean Into the Magic
Yes, it’s hard. But it’s also filled with a kind of magic you won’t find anywhere else. The honesty, the quirks, the milestones that make your heart explode—raising a child with ASD teaches patience, perspective, and unconditional love on a whole new level.
A Note From Nicole
As a mum of four, including my beautiful daughter who is on the autism spectrum, I won’t pretend it’s all rainbows and quiet car rides. Some days feel like I’ve climbed a mountain before 9am (with a toddler hanging off one leg and someone yelling about toast being cut the wrong way). But in the chaos, there’s also so much beauty.
My daughter has taught me to slow down, to listen differently, and to celebrate the tiniest of victories with the biggest of cheers. Yes, it's exhausting. But it's also filled with joy, wonder, and a depth of love I never knew was possible.
Starting Sensory Planet came from that very journey. I wanted to create a space where parents like us could find the tools to support our kids and feel seen ourselves. Because you deserve that. You’re not just raising a child—you’re raising understanding, breaking stigmas, and showing up every day with a fierce kind of love.
You’re not alone, and you’re doing an amazing job—even on the days it doesn’t feel like it.
With love (and snacks always in my handbag),
Nicole
Founder of Sensory Planet
Mum, advocate, and occasional cryer-in-the-shower